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Take
a few minutes to answer these questions about your school-going
child:
- -
Does he or she have creative bright ideas but cannot
seem to read very well?
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Does he or she have problem paying attention to
what others are saying or doing or
feeling?
- -
Does he or she have trouble comprehending or organizing
simple instructions that other children
of that age are capable of?
- -
Does your child have no problem with reading, but
cannot follow a simple dictation
exercise and write down what is being
said aloud?
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Does your child far outstrip others of his or her
age at school work, comprehension of new ideas,
and seems to excel at anything he or she attempts?
Does this child appear unruly and frustrated,
or say that school is "boring"?
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Does your child read words backwards? Does he or
she have trouble with certain types of numbers
or alphabets, like confusing 'b' and 'd' or 12 and
21?
- -
Is your child unable to understand the concept of
time, like the words "yesterday",
"today", or "tomorrow"?
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If
you answered 'yes' to any one of the questions above,
and if your child has normal vision, hearing, and no
physical problems, then it is possible that he or she
has a special need for attention and care. No one knows
a child better than his or her parent, but sometimes
even parents need help in identifying what their children's
problems are in order to fulfill their roles as caregivers.
Sometimes our children can confound us with the contradictions
in their behavior, where they may be bright and capable
of many different types of play and creative activities,
and yet do poorly at school, despite putting a lot of
effort and time into homework. Some may simply be unable
to express themselves to others and not only because
they are shy or withdrawn. If you have been noticing
inconsistencies in a child's behavior it may be time
to consider that he or she requires some special attention.
And as a parent your insightful observation and a 'knowingness'
of your child's abilities, and your calmness and efficiency
in understanding what is wrong could go a long way in
helping a child who feels trapped and silent inside
his/her world. |
'Children
with special needs' is a broad phrase that includes a range
of developmental problems children have, arising from a number
of factors. These could include:
- Mental
DISABILITIES like Autism, Down's Syndrome,
Turner's Syndrome, arising out of genetic complications
at the time of pregnancy. The child is born with obvious
signs and symptoms of a disability
- Physical
DISABILITIES like polio, paralysis, or
visual impairment, which are also congenital and evident
in their manifestation
- Communication
and Learning DISABILITIES are hidden/subtle
handicaps which may not be evident to others, but affect
a child's ability to either interpret what they see and
hear, or to link different functions like sight, language,
hearing, articulation, or to express what they are feeling
and respond to other's feelings through words, play, gestures,
and body language.
As
a parent it is not important to merely find a label that describes
your child's behavior, for labels only describe the symptoms
rather than clarify the underlying difficulties, but to understand
the problem deeply in order to devise an intervention and
treatment plan. As a parent only you can:
- -Investigate
the options and decide upon the best services for your
child, and refine and update it over time and the
child's development
- -Harness
your child's emotions and emotional problems in coming
to terms with these problems
- -Enable
your child to climb towards his or her own unique potential
- -Encourage
mutual communication and intimacy
Before
you allow yourself to be swept away by paranoia, or rush to
find a label that will encapsulate all that is going wrong
with your child, take some time to sit and think about a whole
range of things your child might be experiencing. A number
of reactions that a child is exhibiting might be a fall-out
of other emotional problems and disturbances that the child
is facing either at home or at school - like bullying at school,
work pressure, tension in the home or with a sibling, sexual
abuse etc.. So do spend some time evaluating your home environment
and in talking to your child about what he or she is feeling,
and take time to understand the exact nature of the problem
in learning and/or communicating.
It
is also important to recognize that we assess and label dis/abilities
on the basis of children's school performance, which is not
always the best indicator of a child's skills and abilities.
A school system of education puts a lot of pressure on children
to perform rather than to learn, and the field of abilities
that are tested is very narrow. For example, a child who is
sensitive, poetic and artistic and who enjoys painting and
writing and theatre and who does not top the class in Maths
and Zoology may not really have a "disability", but is just
different in his or her talent and self-expression. Our school
system sets up a strict code of success and achievement based
on an arbitrary marking and ranking system, so children are
trained to perform during tests, and therefore see their self-worth
and abilities in terms of school marks alone, rather than
in a holistic way that incorporates hobbies, the arts, sports,
leadership etc. The old adage "all work and no play makes
Jack/Jane a dull boy/girl" is apt for most children around
us, who'se sense of creativity, fun and play has been dulled
by having to swallow and regurgitate volumes of text taught
in the most boring of ways.
As
parents and teachers we put pressure on children to perform
at school work without realizing that children's expressions
span a wide range of abilities, and school work needs to form
only one aspect of how we assess a child's potential. Some
children are blessed with a wonderful sense of images and
imagery, others respond to music and dance, some have wit
and articulation, and some are athletic and graceful. In the
Academy award-winning movie Rain Man, Dustin Hoffman plays
an Autistic Savant (classified as a form of a mental disABILITY)
who can multiply six digit numbers in under five seconds,
remember complicated sequences of playing cards, memorize
half a phone directory overnight, and count a heap of toothpicks
by looking at them. All tasks that would supposedly enable
a school-going child to excel at any exam; and yet he was
unable to express himself in ways that we "normal" people
expect through language, articulation, and interpersonal communication.
Was the character a "genius", was he "dumb", or just simply
"mad"? We must be cautious about the kinds of standards of
excellence and performance that we set up for our children,
and the arbiters of "normalcy" and "abnormalcy". Each child
has a different rate of learning, absorption, and comprehension.
Having difficulty in some areas of learning does not necessarily
mean that our child is incapable of all learning.

Unlike
other disabilities, such as paralysis or blindness, a learning
disability (LD) is a hidden handicap. A learning disability
doesn't disfigure or leave visible signs that would invite
others to be understanding or offer support. LD is a disorder
that affects people's ability to either interpret what they
see and hear or to link information from different parts of
the brain. These limitations can show up in many ways--as
specific difficulties with spoken and written language, coordination,
self-control, or attention. Such difficulties extend to schoolwork
and can impede learning to read or write, or to do math. Learning
disabilities can be lifelong conditions that, in some cases,
affect many parts of a person's life: school or work, daily
routines, family life, and sometimes even friendships. In
some people, many overlapping learning disabilities may be
apparent. Other people may have a single, isolated learning
problem that has little impact on other areas of their lives.

"Learning
disability" is not a diagnosis in the same sense as "chickenpox"
or "mumps." Chickenpox and mumps imply a single, known cause
with a predictable set of symptoms. Rather, LD is a broad
term that covers a pool of possible causes, symptoms, treatments
and outcomes. Partly because learning disabilities can show
up in so many forms, it is difficult to diagnose or to pinpoint
the causes. And no one knows of a pill or remedy that will
cure them. Not all learning problems are necessarily learning
disabilities. Many children are simply slower in developing
certain skills. Because children show natural differences
in their rate of development, sometimes what seems to be a
learning disability may simply be a delay in maturation. To
be diagnosed as a learning disability, specific criteria must
be met.
Some
types of Learning DisABILITIES
Dyslexia:
is a a language-based learning disability in which a person
has trouble understanding words, sentences, or paragraphs.
It is also considered a specific learning disability in reading.
People with dyslexia have normal vision, but they have difficulty
recognizing words. It can involve difficulty in decoding,
sounding out words and comprehension. Ranges from mild to
severe. There is also a small percentage of people who read
words backwards.
A
person can have problems in any of the complex neurological
tasks involved in reading. However, scientists have found
that a significant number of people with dyslexia share an
inability to distinguish or separate the sounds in spoken
words. Some children for example, can't identify the word
"bat" by sounding out the individual letters, b-a-t. Other
children with dyslexia may have trouble with rhyming games,
such as rhyming "cat" with "bat." Scientists have also found
that these skills are fundamental to learning to read. Fortunately,
remedial reading specialists have developed techniques that
can help many children with dyslexia acquire these skills.
However, there is more to reading than recognizing words.
If the brain is unable to form images or relate new ideas
to those stored in memory, the reader can't understand or
remember the new concepts. So other types of reading disabilities
can appear in the upper grades when the focus of reading shifts
from word identification to comprehension.
Gifted:
A kind of exceptionality. The student who is gifted is one
who is very, very bright or smart and who learns things much
more quickly than other students his age. Therefore, the child
can absorb and integrate information and learning at a much
faster rate and feels that school is not challenging enough.
This frustration may be expressed through unruly behavior,
aggression, disinterest in school work and friends etc.
Hyperlexia:
characterized by precocious reading ability or a fascination
with letters, words or numbers, coupled with significant problems
in language, learning, and social skills. Children with hyperlexia
are visual learners - they understand what they see much better
than what they hear. Listening to people talk is like hearing
a foreign language to them.
Specific
Learning Disabled (SLD):
A kind of exceptionality. The student with a specific learning
disability is one who seems to have average or better health,
vision, hearing, and intelligence, but is still unable to
learn things as easily or quickly as most other students his/her
age.
Developmental
Writing Disorder -- Writing too involves several
brain areas and functions. The brains networks for vocabulary,
grammar, hand movement, and memory must all be in good working
order. So a developmental writing disorder may result from
problems in any of these areas. For example, a child who is
unable to distinguish the sequence of sounds in a word, has
problems with spelling. A child with a writing disability,
particularly an expressive language disorder, might be unable
to compose complete grammatical sentences.
Attention
Disorders: Nearly
20% of children who have learning disabilities, have a type
of disorder that leaves them unable to focus their attention.
Some children and adults who have attention disorders appear
to daydream excessively, or are extremely hyperactive and
cannot seem to focus or relax and be quiet and are constantly
seeking stimulation of different kinds. And once you get their
attention, they're often easily distracted. They may tend
to mentally drift off into a world of their own. If, they
are quiet and don't cause problems, their problems may go
unnoticed. They may be passed along from grade to grade, without
getting the special assistance they need. Those who are extremely
active and noisy might be seen as disruptive, hostile, especially
when authorities try to punish them into calming down and
'behaving themselves'.
Understandably,
one of the first questions parents ask when they learn their
child has a learning disorder is "Why? What went wrong?"
Mental
health professionals stress that since no one knows what causes
learning disabilities, it doesn't help parents to look backward
to search for possible reasons. There are too many possibilities
to pin down the cause of the disability with certainty. It
is far more important for the family to move forward in finding
ways to get the right help.
Scientists,
however, do need to study causes in an effort to identify
ways to prevent learning disabilities. Once, scientists thought
that all learning disabilities were caused by a single neurological
problem. But research supported by NIMH (National Institute
for Mental Health, USA) has helped us see that causes are
diverse and complex. New evidence seems to show that most
learning disabilities do not stem from a single, specific
area of the brain, but from difficulties in bringing together
information from various brain regions.
Today,
a leading theory is that learning disabilities stem from subtle
disturbances in brain structures and functions. Some scientists
believe that, in many cases, the disturbances begin before
birth.
Parents
are usually the first to notice obvious delays in their child
reaching early milestones. The pediatrician may observe more
subtle signs of minor neurological damage, such as a lack
of coordination. But the classroom teacher, in fact, may be
the first to notice the child's persistent difficulties in
reading, writing, or arithmetic. As school tasks become more
complex, a child with a learning disABILITY may have problems
mentally juggling more information.
The
learning problems of children who are quiet and polite in
school may go unnoticed. Children with above average intelligence,
who manage to maintain passing grades despite their disability,
are even less likely to be identified. Children with hyperactivity,
on the other hand, will be identified quickly by their impulsive
behavior and excessive movement. Hyperactivity usually begins
before age 4 but may not be recognized until the child enters
school.
What
should parents, doctors and teachers do if critical developmental
milestones haven't appeared by the usual age? Sometimes it's
best to allow a little more time, simply for the brain to
mature a bit. But if a milestone is already long delayed,
if there's a history of learning disABILITIES in the family,
or if there are several delayed skills, the child should be
professionally evaluated as soon as possible. An educator
or a doctor who treats children can suggest where to go for
help.
Assessment
is a way of collecting information about a student's special
learning needs, strengths and interests. An assessment may
include giving individual tests, observing the student, looking
at records and talking with the student and/or his parents.
Assessment is also an ongoing process by which qualified professionals,
together with families, through standardized tests and observation,
look at all areas of a child's development: motor, language,
intellectual, social/emotional and self-help skills, including
dressing, going to the toilet, etc. Both areas of strength
and those requiring support and intervention are identified.

The
effects of learning disabilities can ripple outward from the
disABLED child or adult to family, friends and peers at school
or work. Children with LD often absorb what others thoughtlessly
say about them. They may define themselves in the light of
their disabilities, as "behind," "slow," or "different." Sometimes
they don't know how they're different, but they know how awful
they feel. Their tension or shame can lead them to act out
in various ways--from withdrawal to belligerence. Some may
get into fights or be bullied, others may stop trying to learn
and achieve and eventually drop out of school, or some may
become isolated and depressed.
Children
with learning disABILITIES and attention disorders may have
trouble making friends with peers. For children with attention
problems, this may be due to their impulsive, hostile, or
withdrawn behavior. Some children with delays may be more
comfortable with younger children who play at their level.
Social problems may also be a product of their disABILITY.
Some people with LD seem unable to interpret tone of voice
or facial expressions. Misunderstanding the situation, they
act inappropriately, turning people away.
Without
help, the situation can spiral out of control. The more that
children or teenagers fail, the more they may act out their
frustration and damage their self-esteem. The more they act
out, the more trouble and punishment it brings, further lowering
their self-esteem. It is even more difficult for a child to
cope when and if she engages in other activities like music,
dance, theatre, art where he/she feels comfortable and receives
positive feedback about his/her talents. So 'school' and everything
related to it is avoided, and the child feels resentful and
upset that he/she is not appreciated for things that he/she
enjoys doing.
Having
a child with a learning disability may also be an emotional
burden for the family. Parents often sweep through a range
of emotions: denial, guilt, blame, frustration, anger, and
despair. Brothers and sisters may be annoyed or embarrassed
by their sibling, or jealous of all the attention the child
with LD gets.
Counseling
can be very helpful to people with LD and their families.
Counseling can help affected children, teenagers and adults
develop greater self-control and a more positive attitude
toward their own abilities. Talking with a counselor or psychologist
also allows family members to air their feelings as well as
get support and reassurance.
Behavior
modification and remedial education also seems to help many
children with hyperactivity and LD. In behavior modification,
children receive immediate, tangible rewards when they act
appropriately. Receiving an immediate reward can help children
learn to control their own actions, both at home and in class.
A school or private counselor can explain behavior modification
and help parents and teachers set up appropriate rewards for
the child.
Parents
and teachers can help by structuring tasks and environments
for the child in ways that allow the child to succeed. They
can find ways to help children build on their strengths and
work around their disABILITIES. This may mean deliberately
making eye contact before speaking to a child with an attention
disorder. For a teenager with a language problem, it may mean
providing pictures and diagrams for performing a task. For
students with handwriting or spelling problems, a solution
may be to provide a word processor and software that checks
spelling. A counselor or school psychologist can help identify
practical solutions that make it easier for the child and
family to cope day by day.
Every
child needs to grow up feeling competent and loved. When children
have learning disABILITIES, parents may need to work harder
at developing their children's self-esteem and relationship-building
skills. And self-esteem and good relationships are as worth
developing as any academic skill.
Can
these disabilities be outgrown or cured?
Even
though most people don't outgrow their brain dysfunctions,
people do learn to adapt and live fulfilling lives. There
are a number of children who make a life for themselves--not
by being cured, but by developing their personal strengths.
There are always alternative ways by which they can learn
and enjoy their other talents.
Even
though a learning disABILITY doesn't disappear, given the
right types of educational experiences, people have a remarkable
ability to learn. The brain's flexibility to learn new skills
is probably greatest in young children and may diminish somewhat
after puberty. This is why early intervention is so important.
Nevertheless, we retain the ability to learn throughout our
lives.
Even
though learning disABILITIES can't be cured, there is still
cause for hope. Because certain learning problems reflect
delayed development, many children do eventually catch up.
Of the speech and language disorders, children who have an
articulation or an expressive language disorder are the least
likely to have long-term problems. Despite initial delays,
most children do learn to speak. For people with dyslexia,
the outlook is mixed. But an appropriate remedial reading
program can help learners make great strides.
With
age, and appropriate help from parents and clinicians, hyperactive
children become better able to suppress their hyperactivity
and to channel it into more socially acceptable behaviors.
Books
for Children and Teens With Learning Disabilities
- Fisher,
G., and Cummings, R. The Survival Guide for Kids with
LD. Minneapolis: Free Spirit Publishing, 1990. (Also available
on cassette)
- Gehret,
J. Learning Disabilities and the Don't-Give-Up-Kid. Fairport,
NY: Verbal Images Press, 1990.
- Janover,
C. Josh: A Boy with Dyslexia. Burlington, VT: Waterfront
Books, 1988.
- Landau,
E. Dyslexia. New York: Franklin Watts Publishing Co.,
1991.
- Marek,
M. Different, Not Dumb. New York: Franklin Watts Publishing
Co., 1985.
- Levine,
M. Keeping A Head in School: A Student's Book about Learning
Abilities and Learning Disorders. Cambridge, MA: Educators
Publishing Services, Inc., 1990.
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